HAEノート～遺伝性血管性浮腫の患者さんのための症状記録～

"HAE Note" is a symptom recording app for hereditary angioedema (HAE) patients and their families.

◇I want to protect you and your family◇

◆Symptoms/QOL recording - To understand current seizure symptoms -

You can easily record the symptoms of the seizure by using the camera and memos to make it easier to understand the state of the seizure.

In addition, QOL (*) allows you to easily record the effects of seizures in your life by simply answering them in the app.

* QOL is an abbreviation of Quality of Life, meaning "quality of life" and "quality of life", and is an index that is continuously monitored to aim for "living better".

[What can be recorded]

Beginning of seizure, end of seizure, photograph of seizure site, designation of seizure site, seizure intensity, presence/absence of treatment, notes, prodromal symptoms (*), HAE treatment drug

*Premonitory symptoms are symptoms that precede an attack.

◆Treatment support - For the correct use of medicine -

By registering the medicine you are using, you will receive a notification, preventing you from forgetting the medicine time.

◆Looking Back -Characteristics of seizures, to learn about them-

You can easily look back on the symptoms and number of past seizures using photos and graphs, and communicate them to your family and doctors in an easy-to-understand manner.

The recorded QOL can be checked by a doctor.

Symptoms and troubles in daily life can be output to a report.

◆Protecting your family －To protect your precious family－

・Create a family tree

Create a family tree to check the status and results of family tests taken by family members and relatives. You can also print and share.

・Understand and tell

You can tell your family and close people about the disease of HAE using videos and template sentences by e-mail or LINE.

・HAE card

In the event of an emergency, you can tell the people around you about your treatment.

＞

I don't know what kind of symptoms HAE has...

-difficult to explain symptoms

・Illness is not understood

・I don't know when the seizure will occur

・Maybe a family member has HAE (hereditary angioedema).

■Member registration

When using "HAE Note", if you register as a member, data will be saved in the cloud, and you will be able to use the report creation function and medicine registration function.

You can use it without registering as a member.

*The entered information is saved only on your smartphone.

■ Target area

This application is intended for use by residents of Japan.

[Providing company]

Takeda Pharmaceutical Company Limited

[Operating company]

Welby Co., Ltd.

https://www.welby.jp/

[App supervision]

Dr. Isao Osawa, Director of Saiyu Soka Hospital